Ménière’s disease

So yea, I have it.

Unless you have Ménière’s you won’t know what it is. It’s not common and is very confusing. Wikipedia can explain it a lot better than I can.

To make the story short and sweet: I was diagnosed with Ménière’s disease in February 2001. I was 14, almost 15. I suffered for about a year and then I stopped experiencing symptoms and thought I was over it. Fast forward to November 2009 when I got what I thought was just a extremely bad ear infection. Two months later I started having classic Ménière’s disease symptoms again. Oh joy. To rule out infection I was put on antibiotics for a month. No relief.

Monday night my mom and I drove to Memphis for a Tuesday morning appointment at The Shea Clinic which ended up lasting all the live long day. 9:10am to 3:15pm to be exact. They ran a total of 5 tests on me, sticking tubes and ear buds in my ears and electrodes on my head. It was interesting to say the least but all of those tests and their results were explained in great detail to me by Dr. Paul Shea at the end of the appointment.

This is what it boils down to:

  • All the results show that I have mild to moderate Ménière’s disease.
  • To the doctor’s knowledge, I am the youngest to have ever been diagnosed (at age 14) with Ménière’s disease.
  • I have 88% hearing in my left ear (which is the ear that I have  Ménière’s disease in) and 96% in my right. With most Ménière’s disease cases it usually starts out in one ear and over time spreads to the other ear. I am not yet completely bilateral but I can tell, it won’t be long.
  • I will have to get hearing aids some point in the future for my left ear for sure because even with treatment I will never regain any of that lost hearing and my hearing will progressively get worse. Yay.
  • Dr. Paul Shea wants me to have a procedure done where they sedate me, cut a tiny hole in my ear drum with a laser, and inject a cocktail of drugs into my middle ear that will be absorbed into my inner ear. These injections are given in three rounds in three days. He wants me to have this done as soon as possible because yet again I am so young and already at stage 2 of 4.
  • I have to make a huge lifestyle change: a low sodium diet. Salt/sodium makes you retain water/fluid and the basis of Ménière’s disease is the retention of fluid in the endo-lymphatic sac in the inner ear. So, I will be on this diet for the rest of my life.
  • I also have to take a diuretic for the rest of my life. This drug will decrease the amount of fluid my body retains and in turn make me have to pee like every hour so. I’m not kidding.

I don’t know if you are aware of this or not but everything, and I mean EVERYTHING, has salt in it. In fact, more food than you could ever imagine actually has medium to high salt content.

Do you understand what this means?

No fast food.

No eating out period really.

No processed foods.

Well then, what CAN I eat? Fruits, veggies, and everything else has to be homemade so I can control the amount of salt in the foods.

You think I’m exaggerating? Believe me, I wish I were.

Not only can I eat hardly anything but what I do eat I have to be SO CONSCIOUS about. You think counting carbs is hard? Try counting sodium and staying between 1,500 mg and 2,000 mg when EVERYTHING has sodium in it! I didn’t realize this until now either.

Earlier tonight, while talking to my mom on the phone, I was reporting in to her (it’s great that she’s a dietitian!) what I’ve eaten today and how much sodium each item contained and I mentioned in passing “I don’t think I can keep this up for long”. My mom’s reply? “Well, do you want to go completely deaf?”

Uh no. I don’t.

Contact Me|Share on Facebook|Back to Top|Pin it
Mel - June 1, 2010 - 12:27 pm

*Hug*
I’m sorry you have to go through this. You’re mom is right — in order to keep from being deaf, you have to do what you have to do. Imagine being diabetic, having high blood pressure, SEVERE food allergies. Be grateful you don’t have to go through that. :) Hey! And you’ll eat much healthier! That’s the positive side to this!

Kat - June 1, 2010 - 3:54 pm

Oh crap, that really, really sucks. You’ve mentioned Ménière’s before but not the diet. I have to cut down on salt in my meals just because I love salty food so much and eating too much of it obviously isn’t healthy in any case. But cutting it out altogether does seem pretty impossible at first sight…

Did you find some good recipes on the blogs you mentioned a couple days ago?

I’m sorry you have to deal with this. <3

Pam - June 1, 2010 - 4:42 pm

Oh my goodness. This is scary. But I know you can do it! You will provail and come out on top. I am sending good vibes your way…..

Mrs. Smith - June 1, 2010 - 9:55 pm

Oh my, that’s so terrible. I’m so sorry to hear!!!

My grampa as on a low-sodium diet for basically my entire life. He ate out often, usually requesting no salt with enthusiasm I didn’t understand till I was about 19.

I can tell you: Blackberry Pancakes at Cracker Barrel were the man’s best friend. :)

Destin, part I

Staying in a condo while on a vacation sounds great doesn’t it? Sure beats staying in a hotel room. I’ll post pictures as soon as we get back home, internet connecting is too slow for uploading pictures, but in the mean time I can still talk about it. The condo, that is.

About 6 years ago my dad and two of his business partners/friends went in together and bought a 3 bedroom/2 bathroom condo in a condominium complex called Sterling Shores right on the beach in Destin, Florida. Since the condos in the complex are for rent and sale those that are owned can also be rented out. My dad and the two others pay a monthly mortgage and monthly HOA fees just like you would any other condo or home that your own. The only difference is that Sterling Shores can rent our condo out to people, just like they would rent out hotel rooms, for close to $3,000/week and the complex gets a small share while my dad and the others get money to help pay for the mortgage. I think they just recently paid off the mortgage but HOA fees alone are $600/month. Someone’s gotta pay for that.

That’s were the renters come in. People rent out the condo for a week or so at a time and pay that $2,800 something. The owners can stay for free as long as they want, Sterling Shores doesn’t care as long as the condo’s mortgage is paid. But because the HOA fees still have to be paid we only come and stay for one week a year, as do the other owners. Every once in a blue moon, though, our condo won’t br rented out for the upcoming week and we’ll have the chance to come and stay for free. Two summers ago my little brother John and his friends found out on a Thursday night that the condo was free for the next week and left two days later for a full week. I think he brought along 7 friends; that’s 8 boys to 1 king bed, 1 queen bed, 1 full bed and a pull out couch; 8 boys to two bathrooms and two bathroom vanities ! I guess boys don’t care too much about that sort of thing, though.

My dad gave Neil and I the option to come down a stay if the condo wasn’t rented some week this summer. We’ve already made a list of people we’re planning on asking if the opportunity arises and we’re able to go. Of course it would be nice for just the two of us to come down alone. Like a second honeymoon!

Pictures of the condo to come!

Contact Me|Share on Facebook|Back to Top|Pin it
jordan - May 23, 2010 - 3:04 pm

LOL. Sorry but where did you find Techi.com/the tweet that advertised it?? I ask because my cousin’s fiancee is the senior editor for that site & I wrote for Techi for a month, for my internship.

Anyways.. neat! :)

jordan - May 23, 2010 - 3:04 pm

Damnit.. sorry, I commented on the wrong post. :(

John - May 23, 2010 - 5:11 pm

Correction: We found out the night before we left that we could and would go. Also it was just 5 of us. I don’t know where you got 8 from.

Rachie - May 23, 2010 - 6:37 pm

@John I think I got 8 from looking at one of the pictures. I guess I thought I saw more than there were. 5 is still a lot of boys!

Wordless Wednesday: Destin Edition

{photo by me; photo of my brother John; photo taken Saturday, 5/15/2010 in Destin, Florida}

Contact Me|Share on Facebook|Back to Top|Pin it
Kat - May 20, 2010 - 9:35 am

The parents, my brother and I will be at the beach for 2 weeks this summer (on a Dutch island) and although I’m not necessarily looking forward to the whole “super active family vacation” aspect of it, I CAN’T WAIT TO BE RIGHT ON THE OCEAN AGAIN. Although… it’s the North Sea so I’m pretty sure it’s quite different from the Atlantic in color, temperature, etc. ;)

I hope you guys are having a wonderful time! <3

Erin - May 20, 2010 - 9:37 am

That’s going to be me in a month! Yes, hairy legs and all

Pam - May 20, 2010 - 4:39 pm

I want to go to DESTIN!!!!

A new look for a new season

Spring is here!

Today we experienced the most spring day ever. Allow me to elaborate.

It was cloudy this morning afternoon when I woke up. It wasn’t hot but definitely warm outside and VERY humid. As the day grew on it slowly turned a little chilly out but the sun started to shine through the clouds and all of the sudden it was 6PM and there wasn’t a cloud in sight. Now, a few clouds have moved back in but it’s still the same temperature as before.

That was in Eddyville.

In Murray (an hour south) it was sunny in the morning and rained and hailed in the afternoon.

In Paducah (35 minutes west) it was cloudy all day long. I think it threatened to rain but never did.

In Greenville (an hour east) it was hailing and tornado(ing) all the live long day. I was told, anyway, by Megan who’s spending some time there with Bryan’s family.

It’s just like Kentucky to have 7 different levels of spring in one day within a 60 miles radius.

It’s just another reason why I love Kentucky.

+ + + + + + +

I’m sure most of you are aware of the flooding that happened in middle Tennessee. I haven’t seen it personally but I’ve talked to a few who have and I’ve seen plenty of pictures.

It’s devastating.

There is no other word to describe the damage.

While we didn’t get it anything as bad as middle Tennessee we did have our share of flooding here in the lakes area.

The yard to the right of ours.

They can’t get to their docks.

You can see our dock on the left side of the picture. It has a white roof.

The bench at the edge of our yard.

We can’t get to our dock unless we take the paddle boat, which my momma did frequently.

My dad had to rig his hunting/fishing boat up the dock and the dock ramp to prevent it from breaking away from the shore in case the water level got any higher. It did rise higher in later days but thankfully not enough to damage anything.

Our neighbor’s yard and dock.

Their neighbor’s yard and dock.

+ + + + + + +

I may or may not be blogging for the next week while I’m on the family vacation. You can bet that I will be taking way too many pictures of the beach and much more. Look for them soon!

Contact Me|Share on Facebook|Back to Top|Pin it
Kat - May 15, 2010 - 4:20 am

I love the new look! The colors are so fitting for (late) spring and you know I love very clean, white background, etc. themes so this is perfect for me! Ha. I also like that your picture in the sidebar changes! :)

I truly hope I can come see you at the lake house one day because these pictures – in spite of the flooding – are *so* beautiful! I’ve seen some pictures of friends in the neighborhood I lived in in KY (in the Frankfort area) and their flooding was really horrible, worse than yours I think – but obviously not as bad as in Tennessee. I guess the weather really is nicer at the lake! :)

I somehow missed where you guys are going for your vacation…? But “beach” always sounds good to me! Enjoy yourselves! <3

Mel - May 15, 2010 - 8:42 am

I love the new look! Colorful!

emmysuh - May 19, 2010 - 8:45 am

New layout is cute, very playful.

It’s weird that KY has so much variety in every season — I used to walk to class in freezing rain on the phone with Mama, who would say that there was snow in Paducah…odd.

Pam - May 20, 2010 - 4:41 pm

Love the new look!! Hope the floods don’t do any more damage around you.

RachieAnn.Com - May 27, 2010 - 12:05 am

[...] I was taking my final in my nursing class, or when Neil was graduating from college, or when the spring flood [...]

What I’m looking forward to

This summer is going to be interesting. So many changes and at the same time a lot of what went on last summer.

Thank God summer is finally here!

Let’s get this party started, shall we?

May 8 - Neil graduates from college! Now THIS is exciting! He’s graduating a year late because his first year and a half was spent on being an architecture major – something I don’t think he ever wanted to do but was just doing it because there was a possibility for lots of moola to be made. Happiness is more important than wealth. I’m glad he’s graduating with a degree in which he’ll LOVE to use – Health and Physical Education. He was born to be a P.E teacher and hopefully one day, he’ll couch a high school basketball team…maybe even a college team! Who knows!

May 9 – Mother’s Day! I’m lucky to have two mothers to celebrate with and a sister in law who recently became a mother. I love giving presents too! I got my mom a Jim Shore figurine because she LOVES and collects them. I also bought her a Nutritionist Key Chain..because she’s a dietitian and they don’t make many things for dietitians….good enough. Neil and I chipped in, along with the other siblings, and got Terri a new stove/oven. I want to tell you all SO BADLY what I got Kelly but I’m afraid she might read this a then the surprise will be ruined. Just know that I am SO EXCITED to give it to her!!

May 15-22 – Family Vacation Time! This year we’re going to Destin, Florida and staying in our condo that’s right on the beach. Yea, we won’t be able to get in the water due to the oil spill/leak/suckage but the water is usually chilly around this time of year so no biggie! We’ll still be able to enjoy the beach and shopping and family time. I am upset that we won’t be eating much fresh seafood though:(

May 25 – I finally have an appointment with an ENT doctor at the Shea Clinic in Memphis, TN. I finally might get REAL treatment for my Meniere’s Disease!

June 20 – My great grand mother would have turned 98 June 17th so in her honor I am singing her favorite song at church the Sunday following her birthday. I am really excited and really nervous about it. Hmm, I should probably start practicing!

June 28 – Cardinals game! My dad’s company gets 4 season tickets every year and divide them amongst a few people. We chose the 28th of June because it was the only date our best friends Megan and Bryan could join us. It’s a Monday evening game so we’ll drive up to St. Louis that afternoon and return late that night. It’s been 2 years since we’ve seen a game so it’s about time!

June 30 – Twilight: Eclipse comes out in theaters! Yea. Enough said!

July 3 – Thunder Over Eddy Bay: Eddy Creek’s annual Fourth of July fireworks show that takes place over Eddy Bay. This will be my family’s 6th year attending the fireworks. It’s something I look forward to every summer.

July 4-9 – Kum Ba Ya Junior Camp. I’ve yet to find out if I’m actually going to be able to help Erin and counsel this year. I had to take off from work for my family vacation in Destin so I’m not sure if they’ll let me have another full week off. I really hope I’m able to help out tho.

July 7 – My and Neil’s 3 year anniversary!!

July 11 – As an anniversary present we’re getting our bridal/wedding photos re done!! Eeee!:D

Other than those special dates I will be working and enjoying the lake every single day this summer. I can already tell this is going to be one good summer.

Contact Me|Share on Facebook|Back to Top|Pin it
Cristin - May 9, 2010 - 9:36 pm

Hold the phone. You’re coming to Memphis?!?!?! WHY am I just now finding out about this?!?!?!?! We are DEFINITELY having lunch or something!!! Gimme the details of your appointment and travel time! You’re more than welcome to stay at my house if you don’t want to make it a day trip!!

Erin - May 10, 2010 - 9:07 pm

You are going to the Cards game with Megan and Bryan? SO I guess that means you aren’t taking us?

emmysuh - May 11, 2010 - 3:45 pm

Oh, yeah, I’m with Erin, I thought we were doing a girl date. :( Sad face.

Wish I were going to the beach with ya’ll!!

I think we’re also preparing that God is our Refuge and Strength for Anita’s birthday…somewhere around there.

Rachie - May 12, 2010 - 11:55 am

@Erin, @emmysuh Yea, I wanted to take you guys to a Cards’ game too. About two months ago I got the tickets for me, Neil, Bryan, and Megan to go and thought I could get another set to take my friends but they were given out fast. No tickets left :( Next year I’ll get tickets for us first!

@emmysuh Don’t get me wrong, I’m really looking forward to our Destin trip but knowing how much you LOVE the ocean I don’t think you’d have as much as fun you’d like seeing as we can’t get in the ocean. SAD DAY! It’s going to be nothing but pool for the whole week. Oh, and shopping of course! Also, Beth is waiting on my work schedule to see when I’m even going to be able to sing. If I can sing the Sunday before her birthday then you guys are singing God is our Refuge(…) the Sunday after, and vice versa. I wish I could sing both Sundays!

Reese - May 13, 2010 - 10:13 pm

Seems like you’re going to be quite the busy girl!

Hope you have a great vacation. :)

RachieAnn.Com - June 25, 2010 - 10:03 pm

[...] already done my fair share this summer – attended my husbands graduation from college, went to Destin, Fl for a family vacation, [...]

F a c e b o o k
T w i t t e r
P i n t e r e s t